Doctors, Specialists, and Therapists, Oh my!

I'm processing a lot since our girls' last doctor visit.  We have been on waiting lists for various therapies for the entire two years that they've been living with us.  That is a long time.  However, the number of people trained in the treatments recommended for our girls does not match the number of people needing the therapy. And there is an apparent baby boom among these golden ticket therapists, so it seems there are more on maternity leave than there are taking patients.  It's a frustrating situation.

But I am a card-carrying homeschool mom, so I read books, watch videos, and do my best to meet their needs.  I've done this before when my son needed speech therapy, and I got tired of sitting behind a mirror at a university speech therapy program 100 miles (no lie) from home three days a week just to watch people not understand him.  So, I decided to do it at home. The first time that boy said "k," I could have flown!

Later, I discovered my first daughter has the most severe dyslexia of all the dyslexias.  This goes with her over-achieving, competitive personality; if she's going to be dyslexic, then she's going to out-dyslexic all the dyslexics! All the therapies available were through the public school system in our area and I was invested in staying out of that dysfunctional rabbit hole. So, I decided to do it at home.

We participated in therapies for our first foster children and the experiences were overwhelmingly positive.  I learned a lot. Since then, I got my degree in education, with dual emphases in Gen Ed and SPED. The various diagnoses and possible diagnoses of our girls don't scare me very often (mostly).  I feel like I can tackle them with some competency.

Put that on the shelf for a moment with me while I discuss a deeper thing that I don't like talking about.  I have said before that our interactions with therapists and medical personnel for all our foster placements and adopted girls have been positive. But my experiences with doctors for myself and my children have been wildly different. Ask me how long it took to be diagnosed with POTS, and how I was treated until I was. I had an eye doctor throw a pen across the room and storm out because he conducted the entire exam not knowing my contacts were in.  There was the dentist who rested his tools on my chest and grabbed 'widely' to pick them up.  I can't forget the gynecologist who argued with me to get an IUD while he biopsied my uterus.  When I wouldn't give in, he tore off his gloves and dropped them on the floor before walking out.  He left me bleeding on those gloves, shaking.  Whenever my friends went for their visits, he told them that they should tell me to come back to get the IUD, hipaa be damnned. Thankfully the experiences with my kids' doctors tended toward mere incompetence and arrogance.

My point is that I'm scared. So scared that I didn't even recognize it. The girls' current primary said she would try to push some referrals to get therapy going.  I'm grateful.  Relieved.  I need help.  They need help.  It's a good thing.  

But I was cooking dinner that night and making mistakes that would make my poor grandma roll in her grave.  My dinner roll dough took my KitchenAid for a walk across the length of my counter.  I burned my fingers as I tried to get the meat from the drumsticks I cooked.  The entire room looked like I violently decorated it with a 20-pound bag of flour.  I got overheated, so layers of clothes littered the floor because I'd ripped them off and dropped them where I stood.  And then I cried.  And cried.  

My sweet husband came to my rescue, asking me what was wrong.  I asked if we could just pretend that I was on my period because whatever was going on was just as reasonable as that.  He stifled his laughter as he watched me tear at drumsticks and cry that it looked like meat stuck in a dinosaur's maw and that I didn't want to eat dinosaur food.

It took the next 24 hours for me to realize that I'm scared of getting entangled with therapists who'll make my girls' lives harder.  I'm scared that helping in one area could exacerbate dysfunction in others. I worry about getting entrenched and not knowing how to get out.

I have no pat answers yet. It astonishes me that God works on me while I am trying to raise these girls well.  I didn't think this was something I needed to address.  It just is: I don't trust doctors, but I do what I need to for my kids. But maybe changes are coming?

Trauma Triggers

Sometimes I believe my own hurts are well in my past, and that I have captured all the thoughts and submitted them all to the Lord.  I think the triggers have no power, because I see how the Lord has redeemed the terrible things (or trust that He will), and I am healed from the base-brain trauma responses that used to cripple me.  The PTSD is gone.

I believe all this with a measure of realism. I don't think that I am Mighty Mouse or anything. I know I am not invincible.  I know it is the Holy Spirit doing the work.  I know bad or hard things can (will) still happen in the future.  I even know that when a memory emerges, I will have feelings about it.  But I have tools and support and know what to do.  I won't drown. 

And then...

I watch one of my girls behave out of the box and I realize all the hurt they carry each day without words to explain.  I ache for them.  I feel protective. Someone hurt my baby.  I feel angry. I feel the loss that I wasn't there to protect her, to prevent it. I hate that I may never know exactly what happened.  All these things feel normal and right. It is reasonable to respond with these thoughts and feelings when someone we love is hurting.

But there is something more.  Something I can't quite put my finger on, and it's shaking me. It is blessedly unfamiliar enough that I can't understand why I feel like I just need to sit down, put something down that I didn't know I was carrying, or loosen my clothes so I can take a full breath. With a frustratingly slow dawning, I realize what it is. My own trauma. Once it clicks, the memories come so quickly that the chronology is a mess.

I need to be healed AGAIN.  I need to be restored AGAIN.  I need to get my feet firmly planted on the Rock Who never moves AGAIN. I know I will. I know He will. It will be ok.

And I thank God for it all. I don't love the ride, but I hear the whisper of the still, small Voice telling me that He is bigger, stronger, and ready for it all.  He is not surprised.  Not by the wave of memories and feelings, nor by the ugliness of what happened. Being reminded so viscerally of the trauma gives me the opportunity to feel just as concretely the goodness of Jesus. And THAT gives me the focus and assurance to look my girls in their big, beautiful eyes and tell them firmly that it will be ok.

Going to the Doctor

 We made it through three well-child visits! As a side note, when the office called to make the appointments, I misunderstood her and thought she wanted to set up wild-child visits. I thought it was a great term and told her so, asking how she knew how appropriate it was. It is NOT what she said. 

Some of our past visits were fiasco-adjacent. I hoped to establish a solidly positive session to create a frame of reference for what a doctor visit COULD be. We talked about expectations, did some role-playing, and equipped them with the times they could ask to hold a hand, sit on a lap, or say no.

And we did it! My girls are watching Dora as I type this and I want to exclaim, "Lo hicimos!" We left the building with three smiling little girls and two gushing-with-praise parents!

We need to make vision appointments, because it is time, but also as a first step to investigating headaches in one girl. There is a good possibility that they will all need glasses, so we'll need to keep monitoring that.

One girl had a rough visit with an insensitive tech a while back, so she was very nervous.  On another side note, the medical staff we have encountered since getting the girls have all been wonderful.  Most are good at speaking in code above the girls' heads to discuss possibly scary or triggering topics.  All are positive and supportive of adoptions. And they are really terrific with the girls.

Anyhow, the one wonky tech left my girl feeling really scared about going, but after all the prep and the amazing primary we see, she did really well.  Our daughter allowed for the exam and test, so...triumph! 

We have a referral to OT.  We have confirmations on other diagnoses and support for our chosen treatments. And we have a plan for behavior that can't be diagnosed yet. Everyone was on board with avoiding shots to keep things positive, so... triumph again!

We have one little miss who has struggled massively with past visits who did very well and said no when she needed to to certain procedures. But she is triggered, so we will spend hours snuggling, affirming, and watching to see her through whatever is going on in her mind and body that she can't articulate yet.

I have to make myself not cry whenever I go to the doctor with them.  It is overwhelming for me.  I love them. Even with a wildly successful visit as this, the tears threaten. I am proud of their bravery and growth. I grieve the gaps in my knowledge. I grieve the brokenness still evident.  And I am hopeful and thankful that we can do this with the help of a team.

I trust God is never surprised by any of this and is always present.  I go through this life ignorant of so much. But I know a God who knows.  He is enough.  I'm thankful that even though I am failing and stumbling, God is bigger than it all--including my flaws and stubbornness.

It's COLD!

 Woooo!  It is a cold week!  We have had negative temperatures--minus another ten-to-twenty degrees with the wind chill factor.  The nice thing is that the snow is sticking around.  You know, we moved here because of the snow.  Our last five years in California were spent in the Sacramento Valley and winters were non-existent.  I missed the snow from the 17 years we'd spent in the mountains, and when we were looking for a new home, snow was a must.

This is our fourth winter here, and I have to say I haven't been impressed.  There are one or two storms that demand we shovel and several other snowfalls that melt away in a day.  I begrudgingly admit this is a blessing because I have three family members who all commute to other cities for work, but still...

So, it's cold, and that keeps the snow on our lawn.  And that makes me happy!

Homeschooling Schedule

I have the privilege of being a new homeschooler and veteran homeschooler at the same time.  I started homeschooling a few weeks after my second baby was born so that my 2.5-year-old would have dedicated time with me.  We kept going until that baby graduated high school.  Through those years we moved twice, changed churches a few times, and lived several different lifestyles.  I founded and ran a homeschooling group with friends.  We did tours and playdates.  I wrote entire programs for us to carry out in co-op-style classes.  I also counseled new homeschoolers, getting them set up to school their kids successfully from home. Throughout all that, we had different children in our home because I was either homeschooling or nannying them.  

I've got some experience! But, true to the assertion that there are as many ways to homeschool as there are families, this is new and different.  Schooling three kids specifically NOT from the beginning with more special needs than my first crew and in relative isolation is different. So, true to form, I am learning as I go.

I recently changed our homeschooling schedule because I was really overtaxing all of us by trying to do a little bit of everything each day.  I thought the consistency and small bites would provide routine so that growth would be steady and the predictability would give the kids a sense of safety and ownership of their days.  It's a good thought worth its place, but it was time to wriggle things around.

So now I have staggered days. On Mondays and Wednesdays, we do core work using Sonlight curriculum. That is Bible, Social Studies/History, Literature, and Science.  I use the four-day schedule, so we double up and still complete a week's worth of work in a week.  On Tuesdays and Thursdays, we do extracurricular activities like Spanish, Piano, and Recorder.  Fridays are special because my husband is home every other week, so we go on outings with him.  When he is at work, we do arts, cooking, and messy science projects.  Each day we do Movement, Reading, Writing, and Math.  We also do a preschool-style circle time each day with things like prayer, calendar, weather, and Bible verses and stories.

So far, it's working out pretty well.  I might flip-flop the pairs of days because I chose hefty work on the days we are committed to Choir and AWANA.  But I'm going to wait.  Because the change is about looking at the week as a whole, I'm giving myself a solid month to adjust.

Our daily routine still exists regarding blocks of time.  I am eager to see how the opened space allows for more connection and breathing room.  

Wednesdays and "Blended" Families

I changed up my homeschooling schedule to find a routine that is less taxing on all of us.  Today is Wednesday, and that means a Sonlight day in the morning and AWANA at night.  Also, my adult daughter comes for dinner on Wednesdays, which shoots Wednesdays as one of our favorites of the week. 

We often have a more substantial meal (read: I actually plan and execute one). The girls go to AWANA and either my grown kids head downstairs to hang out together, or they join my husband and me for some visiting time.  After the girls get home and go to bed, we might watch a movie or play a game.

Blending families is something our culture is practicing these days to do well for the sake of the kids. That phrase usually refers to families on a second (or more) marriage.  Ours feels like a blended family for different reasons, but we still make a special effort to honor the myriad relationships in this group of seven. One of those ways is to have some four-adult time after the girls go to sleep.

Before the girls joined us, we were a tight family with a unique personality.  It is this quality that I thought made us a good candidate to welcome littles into our family.  I think it is imperative to preserve something of that quality so that we still have that special thing to offer the girls.  

Of course, just as important, we have to shift and adjust to being a unified family of seven, where each person contributes their own tweaks and quirks to become a blended... beast? that represents all of us.

Anyhow, these Wednesday nights are a blessing for us to be four.  My kids giggle and jab at each other.  We watch shows that aren't wholly appropriate for kids. We allow for our relationships to evolve--since our kids aren't kids any more. We remember. We share. We plan. We be.