Showing posts with label brain. Show all posts
Showing posts with label brain. Show all posts

Tuesday, March 11, 2025

March: 2023

So, in March '22, we were living the dream. We were doing whatever we wanted to. I was looking for a different job, and trying to find a way to fit in at church, but life was easy--except for the unending illnesses we kept contracting from sick preschoolers. In the eight months I worked there, I had Covid twice, Bronchitis three times, flu, colds, pink eye... It would have been laughable had laughing not triggered breathless coughing fits.

If we fast forward to March '23, the list of changes in our lives was long! My daughter moved into her first apartment, oof! I earned a Master of Science degree in Learning Experience Design and Educational Technology. I got a new job (called The Best Job in The World--outside raising kids) working at a preschool a mile from my home as a 3s teacher two mornings a week, a 4s Assistant one morning a week, and a PreK teacher every afternoon. 

I need to pause to say how serious I am about it being the Best Job Ever. That PreK class was phenomenal! My boss was the most supportive and encouraging boss I'd ever had. And my coworkers? I've never met an entire crew of people so wholly dedicated to loving and teaching children. The board (fewer accolades there, tbh) had just approved opening a Kindergarten class for the following year, so my boss and I were dreaming and brainstorming curriculum, advertising, and schedules. So fun!

Oh, and I need to add another little change to the list of happenings from '22 to '23. We got licensed for foster care and were adjusting to doubling our household with three—THREE—little girls! What?!? How did that happen? We were done. Foster care had shredded our hearts. We were in retirement and nearly empty nesters. We were going to travel. I got a cool degree that I could use to do anything. We were dancing.

Well, I will tell you. Roe v Wade was overturned. The church we were attending had a guest speaker who said there was a difference between being pro-birth and pro-life. Being pro-birth was not enough.  To be pro-life, we needed to meet people as they were living through difficult times, "from womb to tomb." 

There could possibly be an uptick in unwanted babies born. It is an awful thing to be unwanted. My husband was deeply moved and announced that afternoon that if God allowed it, we were going to adopt so we could be a home where kids would know they were wanted. Wow! 

So here we were in March, planning a massive uptick in my commitment to work while fostering three little girls we desperately wanted to adopt. In March, we had gotten word that perhaps they would go back to their first parents. I was an emotional wreck. We never intended to actually foster again.  We wanted only adoptable kids. The girls themselves had heavy burdens of trauma, delays, and needs. Caring for one was more than a full-time job. Three? Fugedaboutit.

What a March!


Monday, March 3, 2025

It's My Sister's Birthday

It's our tenth birthday of hers without her. I am conditioned to look forward to it because she claimed the entire month for her celebration. Of course, now, there are more feelings surrounding the day. I'm just going to tell you about the best woman I've ever known--and I know many, many wonderful women. 


One of the most obvious descriptors of Diane Cherie Porter is that she is intelligent. That is the easy, low-hanging fruit attribute. She was tech-savvy, devoured books in a day, and could teach on any subject. She was so smart that her IQ was still higher than everyone at the office where she had it tested after some of her brain was removed. They fawned over her like she was an A-list celebrity when she was lamenting her diminished skills. 

--You'll have to excuse my verb tenses for this post.  I tend to speak about her in the present tense still because she is a Jesus-lover and thus has eternal life.  But sometimes the past tense slips out as I delve into specific memories.


While her cognitive intelligence defines her and informed everything she did, Diane is so much more than smart. Diane is kind in a tangible way. Her attentiveness, acute memory, and the time she made for people made us feel like we were the most important thing in her life. 

She was the glue in our family. She stayed in touch with all our grands, aunts, uncles, and cousins, as well as all the members of her husband's family. She was the greatest aunt one could want. Those connections mattered to her; the individuals were valuable. I know she prayed for us all regularly and her heart overflowed with love.

Diane had the Spiritual gift of faith. We all have faith in something. And believers are given faith. But Diane had the gift of faith that passes all understanding. She didn't waiver. She was so firmly planted on the Rock that she took on the qualities of a rock. One story I love is that she was late to her own baptism because she was busy bringing a teen soldier to Christ.


Diane could be counted on to speak the truth with love in the face of anything and everything. I benefitted countless times from her talks exhorting me that despite all the evidence that I was drowning, God was bigger than the waves. She encouraged me when I felt like my kids would never overcome their challenges. Or when I thought I would never be good enough for my family.

She went through a lot, including fighting brain cancer for years. Only at the very end, thanks to institutional neglect, multiple brain surgeries, and mind-addling drugs did depression ever touch her. But for the rest of her life, she navigated the difficult things with this assurance that love wins. Sometimes she yelled it at us. "Love wins, you idiot!"


In fact, Diane epitomized joy. She was generous and playful. She celebrated others' triumphs. She infused heartache with the deep unshakable joy that comes with an eternal point of view. She knew what lasted and what was temporary. She made an event out of anything, celebrating everything.

She loved to sing. Every time we got together, she'd beg me to sing two-part songs with her. "This is the Day," "He Has Shown Thee," "Humble Thyself in the Sight of the Lord." There is an older one that goes, 'Brother, Sister, we are young/ And our lives have just begun/...Sons of God/ Hear His holy Word/ Gather 'round/ the Table of the Lord..." I wish I'd joined in more frequently and with more verve than I did.  Ah, hindsight. I've countless songs ranging from hymns to 80s ballads that make me think of her.

Diane used the moniker Mrs. Quiet. It was funny because she is a TALKER. But she was married to a soft-spoken shy introvert. It was her joke. It was also an expression of her undying love and devotion to her husband. Man, she loves him!  Her marriage was a beautiful thing to behold--they were both forever in love, giving favor to the other while happily bickering over everything. They were different in just about everything.  He was not a gamer, or a singer, or gregarious, or crazy-smart, or a voracious reader. I am not sure I ever saw him in front of the computer. But it didn't matter one whit. They were into each other, God, and their family.  That was enough.


Diane was an excellent cook. She threw together feasts and treats while carrying out a bunch of other tasks plus three conversations. She was skilled in savory and sweet dishes alike. I strive to cook as she does, but I am more hit-and-miss and can be quite a disaster in the kitchen.

There is so much more. 

  • She played an integral role in Protestant Women of the Chapel in both California and Texas while her husband served in the army. She loved the women she taught and fellowshipped with. 
  • She homeschooled her kids. She homeschooled other kids. 
  • She worked as the secretary at various churches--and was the unofficial confidant to several priests and pastors. 
  • She would sit on speakerphone with me while I schooled my kids.  We would just spend hours on speakerphone, both of us going about our day with our families.  
  • She loved Jesus. Her love for him drew her into depths ever richer. You couldn't know her without hearing about her Friend. She was a prayer warrior, persevering and persisting in praying for the people she loved.
  • She asked hard questions. We wrestled together with doctrinal beliefs, politics, and any hot topic for years, always seeking truth over merely winning an argument. She loved to think.
  • She loved movies and TV shows. She invested in characters like they were real, applying biblical truths to the worldliest programming, extracting beautiful parables that would shine light for those who would never crack a Bible.
  • She was funny.  She came up with all sorts of silly phrases.  I still use them today, like okeydokey smokeybutt.
  • She was wise and had all sorts of maxims. One was, 'Cry when it hurts to not cry. When the crying starts to hurt, stop.'

Thank you for reading about this lovely woman. I am deeply honored to call her my big sister. You can't know me without knowing at least a bit about her. She prayed my husband into my life. She kept us married for the first decade. I homeschool because of her. She made me brave. She made me love Jesus. So much of who I am is because of her.


Sunday, March 2, 2025

Driving

My adult daughter was in the car with me and mentioned how I point at semi-trucks whenever we get close to one. (I point at them to tell them to stay put.) She said they aren't targeting me; I don't need to drive like everyone is aiming at me. By the way, getting life advice from our young adult children is the best!

The idea shocked me. I don't often feel like all the cars are gunning for mine.  Actually, it's quite the opposite. I feel invisible. I am scared I will get into an accident because someone didn't see me and just tried to be in my space.  

Is this a deeper thing?  Are there people who don't worry about getting into accidents?  It's actually been something that threatens phobia-level fear at different times in my life.  There are seasons when I am a comfortable, confident driver.  Seasons when I have less access to a car, I become timid. The sense that the other drivers won't see me grows, and driving is an exhausting activity.

Even when I am feeling confident, I still point at trucks. I figure they need a little extra help.


Thursday, February 27, 2025

Doctors, Specialists, and Therapists, Oh my!

I'm processing a lot since our girls' last doctor visit.  We have been on waiting lists for various therapies for the entire two years that they've been living with us.  That is a long time.  However, the number of people trained in the treatments recommended for our girls does not match the number of people needing the therapy. And there is an apparent baby boom among these golden ticket therapists, so it seems there are more on maternity leave than there are taking patients.  It's a frustrating situation.

But I am a card-carrying homeschool mom, so I read books, watch videos, and do my best to meet their needs.  I've done this before when my son needed speech therapy, and I got tired of sitting behind a mirror at a university speech therapy program 100 miles (no lie) from home three days a week just to watch people not understand him.  So, I decided to do it at home. The first time that boy said "k," I could have flown!

Later, I discovered my first daughter has the most severe dyslexia of all the dyslexias.  This goes with her over-achieving, competitive personality; if she's going to be dyslexic, then she's going to out-dyslexic all the dyslexics! All the therapies available were through the public school system in our area and I was invested in staying out of that dysfunctional rabbit hole. So, I decided to do it at home.

We participated in therapies for our first foster children and the experiences were overwhelmingly positive.  I learned a lot. Since then, I got my degree in education, with dual emphases in Gen Ed and SPED. The various diagnoses and possible diagnoses of our girls don't scare me very often (mostly).  I feel like I can tackle them with some competency.

Put that on the shelf for a moment with me while I discuss a deeper thing that I don't like talking about.  I have said before that our interactions with therapists and medical personnel for all our foster placements and adopted girls have been positive. But my experiences with doctors for myself and my children have been wildly different. Ask me how long it took to be diagnosed with POTS, and how I was treated until I was. I had an eye doctor throw a pen across the room and storm out because he conducted the entire exam not knowing my contacts were in.  There was the dentist who rested his tools on my chest and grabbed 'widely' to pick them up.  I can't forget the gynecologist who argued with me to get an IUD while he biopsied my uterus.  When I wouldn't give in, he tore off his gloves and dropped them on the floor before walking out.  He left me bleeding on those gloves, shaking.  Whenever my friends went for their visits, he told them that they should tell me to come back to get the IUD, hipaa be damnned. Thankfully the experiences with my kids' doctors tended toward mere incompetence and arrogance.

My point is that I'm scared. So scared that I didn't even recognize it. The girls' current primary said she would try to push some referrals to get therapy going.  I'm grateful.  Relieved.  I need help.  They need help.  It's a good thing.  

But I was cooking dinner that night and making mistakes that would make my poor grandma roll in her grave.  My dinner roll dough took my KitchenAid for a walk across the length of my counter.  I burned my fingers as I tried to get the meat from the drumsticks I cooked.  The entire room looked like I violently decorated it with a 20-pound bag of flour.  I got overheated, so layers of clothes littered the floor because I'd ripped them off and dropped them where I stood.  And then I cried.  And cried.  

My sweet husband came to my rescue, asking me what was wrong.  I asked if we could just pretend that I was on my period because whatever was going on was just as reasonable as that.  He stifled his laughter as he watched me tear at drumsticks and cry that it looked like meat stuck in a dinosaur's maw and that I didn't want to eat dinosaur food.

It took the next 24 hours for me to realize that I'm scared of getting entangled with therapists who'll make my girls' lives harder.  I'm scared that helping in one area could exacerbate dysfunction in others. I worry about getting entrenched and not knowing how to get out.

I have no pat answers yet. It astonishes me that God works on me while I am trying to raise these girls well.  I didn't think this was something I needed to address.  It just is: I don't trust doctors, but I do what I need to for my kids. But maybe changes are coming?



Sunday, February 23, 2025

Trauma Triggers

Sometimes I believe my own hurts are well in my past, and that I have captured all the thoughts and submitted them all to the Lord.  I think the triggers have no power, because I see how the Lord has redeemed the terrible things (or trust that He will), and I am healed from the base-brain trauma responses that used to cripple me.  The PTSD is gone.

I believe all this with a measure of realism. I don't think that I am Mighty Mouse or anything. I know I am not invincible.  I know it is the Holy Spirit doing the work.  I know bad or hard things can (will) still happen in the future.  I even know that when a memory emerges, I will have feelings about it.  But I have tools and support and know what to do.  I won't drown. 



And then...

I watch one of my girls behave out of the box and I realize all the hurt they carry each day without words to explain.  I ache for them.  I feel protective. Someone hurt my baby.  I feel angry. I feel the loss that I wasn't there to protect her, to prevent it. I hate that I may never know exactly what happened.  All these things feel normal and right. It is reasonable to respond with these thoughts and feelings when someone we love is hurting.

But there is something more.  Something I can't quite put my finger on, and it's shaking me. It is blessedly unfamiliar enough that I can't understand why I feel like I just need to sit down, put something down that I didn't know I was carrying, or loosen my clothes so I can take a full breath. With a frustratingly slow dawning, I realize what it is. My own trauma. Once it clicks, the memories come so quickly that the chronology is a mess.

I need to be healed AGAIN.  I need to be restored AGAIN.  I need to get my feet firmly planted on the Rock Who never moves AGAIN. I know I will. I know He will. It will be ok.

And I thank God for it all. I don't love the ride, but I hear the whisper of the still, small Voice telling me that He is bigger, stronger, and ready for it all.  He is not surprised.  Not by the wave of memories and feelings, nor by the ugliness of what happened. Being reminded so viscerally of the trauma gives me the opportunity to feel just as concretely the goodness of Jesus. And THAT gives me the focus and assurance to look my girls in their big, beautiful eyes and tell them firmly that it will be ok.


Saturday, February 22, 2025

Going to the Doctor

 We made it through three well-child visits! As a side note, when the office called to make the appointments, I misunderstood her and thought she wanted to set up wild-child visits. I thought it was a great term and told her so, asking how she knew how appropriate it was. It is NOT what she said. 

Some of our past visits were fiasco-adjacent. I hoped to establish a solidly positive session to create a frame of reference for what a doctor visit COULD be. We talked about expectations, did some role-playing, and equipped them with the times they could ask to hold a hand, sit on a lap, or say no.

And we did it! My girls are watching Dora as I type this and I want to exclaim, "Lo hicimos!" We left the building with three smiling little girls and two gushing-with-praise parents!

We need to make vision appointments, because it is time, but also as a first step to investigating headaches in one girl. There is a good possibility that they will all need glasses, so we'll need to keep monitoring that.

One girl had a rough visit with an insensitive tech a while back, so she was very nervous.  On another side note, the medical staff we have encountered since getting the girls have all been wonderful.  Most are good at speaking in code above the girls' heads to discuss possibly scary or triggering topics.  All are positive and supportive of adoptions. And they are really terrific with the girls.

Anyhow, the one wonky tech left my girl feeling really scared about going, but after all the prep and the amazing primary we see, she did really well.  Our daughter allowed for the exam and test, so...triumph! 

We have a referral to OT.  We have confirmations on other diagnoses and support for our chosen treatments. And we have a plan for behavior that can't be diagnosed yet. Everyone was on board with avoiding shots to keep things positive, so... triumph again!

We have one little miss who has struggled massively with past visits who did very well and said no when she needed to to certain procedures. But she is triggered, so we will spend hours snuggling, affirming, and watching to see her through whatever is going on in her mind and body that she can't articulate yet.

I have to make myself not cry whenever I go to the doctor with them.  It is overwhelming for me.  I love them. Even with a wildly successful visit as this, the tears threaten. I am proud of their bravery and growth. I grieve the gaps in my knowledge. I grieve the brokenness still evident.  And I am hopeful and thankful that we can do this with the help of a team.

I trust God is never surprised by any of this and is always present.  I go through this life ignorant of so much. But I know a God who knows.  He is enough.  I'm thankful that even though I am failing and stumbling, God is bigger than it all--including my flaws and stubbornness.

Saturday, December 7, 2024

Language

For the past couple of days, my seven-year-old has been given instructions that she hasn’t followed.  I know, blow me down!  A kid didn’t obey?  Whodathunk.  What is remarkable is that when asked what instructions had been given to her, she answered with a poorly paraphrased answer.  We would reiterate the directions, and she would quickly adjust her behavior.

After seeing this a few times, I wondered if her brain is interpreting so quickly that she doesn’t have time to process the precise words people say.  So, we played a game to test my theory!

I went around the breakfast table, saying four words at a time for each kid.  On the second loop around, each kid had to say the same words back. 

I gave my three-year-old associated words coupled with sign language and she did nicely. 

For my nine-year-old, I started easy, but she asked for more difficult words.  By the last round, she couldn’t remember her words and said, “I think you need to bring it down a notch!”  She cracked up the whole table with that line.

I worked hard to stump my 25-year-old and could not. My husband joined us for the last round and I couldn’t stop laughing at the words I selected.  I got him on ‘read,’ because he said the baby’s word instead: ‘room.’

As for the seven-year-old, I tried different tactics to see if I could replicate what I was seeing.  I used synonyms, words associated with a theme, and unrelated words. Each round after the first, she kept trying the word ‘smile.’  A few times she tried words that had been given to another player.  I did notice that she never repeated the words in order.  There was always one word that seemed to capture her.

When the game was finished, I talked it over with my 25-year-old son, we were thinking ‘smile’ had been used in the first round.  I looked at all the notecards and was surprised to see that I had never given ‘smile’!  But I did give her ‘happy’ and a sister ‘laugh.’  She did it!  She interpreted the words in the same way we’d seen her do before.  So cool! 

My husband asked, “So, how are you going to teach to that?”  Hmmm…  That’s the rub.

By the way, this was fun!  I recommend pulling this activity out next time you are looking for something around a meal or when you need to wait quietly somewhere.  Everyone was engaged, and there were a lot of laughs.

How am I Raising a California Valley Girl in Iowa?

I was talking with my oldest daughter the other day--one of my favorites, because every day when our family of seven is together is a favori...